A Great Day for Raising Awareness at the Scotiabank Toronto Waterfront Marathon Charity Event
It was a beautiful day for a run and walk on October 20th. Thanks to all those that participated and donated. The CPPF raised close to $12,000 for its projects this year!
Stay up to date on latest research, newly developed patient educational materials, upcoming events and other news from the only Canadian organization supporting Canadians with pemphigus and pemphigoid!
Interested in what we are up to this year?
Only July 15, 2013, the CPPF’s Board of Directors approved the CPPF’s annual plan for 2013-14. In it you will find a list of our most recent accomplishments and the short and longer-term commitments. Projects are undertaken as resource become secured. If there is a project that you are particularly interested, please consider donating or volunteering your time.
Government of Ontario’s Ministry of Health Approval of the Reimbursement of Rituxan (Rituximab) for the Treatment of Pemphigus Vulgaris Announced
Great News for Ontario Patients!
In June 2013, the Government of Ontario’s Ministry of Health and Long-Term Care agreed to fund Rituxan (Rituximab) for the treatment of Pemphigus Vulgaris through the Ontario Public Drug Programs – Exceptional Access Program. Rituximab has improved the lives of many of patients with pemphigus. The CPPF is pleased to have been involved in a process that resulted in more patients with this challenging condition having access to Rituxan.
Jump 4 Pemphigus Raises over $1000 to Raise Awareness about Pemphigus and Pemphigoid
On June 29th, 2013, Nabiha Ghaffur turned 21 years old and jumped out of a plane! She was brave, bold and generous! Thank you Nabiha! The donations will be put to excellent use as we continue to raise awareness and support patients across the country.
Welcome Daria Parsons – Our New Executive Director!
The Board of Directors of the Foundation is pleased to welcome Daria Parsons to our team! Daria has over 25 years of health care experience in the not-for-profit sector as an Executive Director, a project manager, epidemiologist, researcher and writer. She will be working closely with us to ensure that all patient across Canada have the support and information they need, when they need it. Stay tuned for more information on our upcoming plans!
CPPF Celebrates 5 years!
Thanks to the very special people who have been supporting and caring for Canadians living with pemphigus and pemphigoid including the members of the CPPF’s Board of Directors (in this photo), our Medical Advisory Council, our donors (especially the many individual who have made financial contributions), and our affiliate partners – the International Pemphigus and Pemphigoid Foundation, the Canadian Skin Patient Alliance and the Canadian Organization for Rare Disorders.
Thanks to all our Volunteers!
April 21-27 is National Volunteer Week! The CPPF would like to thank all its volunteers especially our Support Group Leaders across the country! Karen and Renay in Toronto, Maria in Montreal, Victoria in Ottawa, and Jeannie in Calgary.
CPPF Submits Evidence to Ontario Ministry of Health for Coverage of Rituximab
In the fall of 2012 the CPPF responded to a call for Patient Evidence Submissions to the Ontario Public Drug Programs (OPDP) of the Ontario Ministry of Health and Long Term Care to assist in their review of the drug Rituximab for treatment of Pemphigus Vulgaris (PV). A number of patients contacted by the CPPF were able to summarize their experiences with Rituximab, which were then submitted. A positive review from the OPDP may allow this drug to be accessible to a greater number of PV patients, due to its high cost. A decision from the Ministry is anticipated in the spring of 2013.
CPPF renews membership with “Imagine Canada’s Ethical Code Program”
The Canadian Pempihgus and Pemphigoid Foundation places a high value on our relationship with you, our donors. Without your support we would not be able to achieve our mission to improve the quality of life of Canadians suffering from pemphigus or pemphiogid. We thank you for your commitment to us. We believe that transparency and accountability are essential to our success. With this in mind, we have recently joined Imagine Canada’s Ethical Code Program.