Our Purpose
To help pemphigus and pemphigoid patients and their caregivers improve the quality of their lives.
To do this, we work with patients and their caregivers, the healthcare community, and other stakeholder organizations to ensure compassionate and caring support programs, deliver innovative educational activities and support relevant research initiatives.
Who Are We
In August 2008, the Canadian Pemphigus and Pemphigoid Foundation became a national not-for-profit corporation and on October 16, 2008 a registered charity (#843646092RR0001). Currently, a number of talented volunteers run our programs and services including an Executive Director who helps coordinate our activities and liaise with individuals and other like-minded organizations to help achieve our goals. Everyone involved in the organization is committed to making a difference in the lives of pemphigus and pemphigoid patients.
To ensure high quality programs and services as well as the most advanced and up-to-date information on pemphigus and pemphigoid, we are guided by an exceptional group of Canadian healthcare experts and practitioners. All members of the Council have significant experience working with pemphigus and pemphigoid patients and/or conducting research related to these diseases.
What We Do
Our activities include:
- Establishing and maintaining support groups for patients and their families across the country;
- Providing up-to-date information on effective treatment and coping strategies and relevant research activities in Canada and around the world; and,
- Educating and informing the healthcare community, Canadian public, government, and other key stakeholders on issues impacting pemphigus and pemphigoid patients and their caregivers in Canada.
Our current priorities include establishing support groups across the country as well as providing relevant and helpful information to patients and their families and friends (i.e., caregivers) through this website and our newsletter. The information is Canadian focused. So you will find out how to remove improve access to drug therapies available in Canada, resources available to you in your local areas through community health centres or your province, etc.